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Prof Dr Amaramalar Selvi Naicker

President Spina Bifida and Hydrocephalus Association of Malaysia Chairperson, National Organising Committee

Dr Sylvia Roozen

Secretary General International Federation for Spina Bifida and Hydrocephalus Chairperson, International Scientific Committee

With great pleasure, we welcome you to the 30th International Conference on Spina Bifida and Hydrocephalus.

This meeting continues the successful tradition of bringing together individuals impacted by this condition alongside their families, healthcare professionals, policy makers and researchers from around the world for a truly international discussion on the latest medical advances and scientific findings on topics in the field of Spina Bifida and Hydrocephalus (SBH).


The conference program will feature scientific tracks, consumer sessions, workshops and forums covering a wide range of topics related to Human Rights, Prevention, and Optimising Management & Integrated Care. For this, we are working to assemble an...

The conference program will feature scientific tracks, consumer sessions, workshops and forums covering a wide range of topics related to Human Rights, Prevention, and Optimising Management & Integrated Care. For this, we are working to assemble an outstanding faculty with deep involvement in SBH care and prevention from around the world along with relevant partners in the public-private-civil sector.


As the finale and tribute to the amazing families and persons with SBH, there will be a fundraising Gala Dinner designated as an ‘An Evening of Stars and Strides’ to celebrate the achievements and resilience of individuals living with SBH. This event promises an unforgettable evening of cultural performances, inspiring speeches and will serve as a platform to acknowledge talent and outstanding achievements by SBH individuals who have excelled in face of challenges.


Moreover, this conference will coincide with the World Spina Bifida and Hydrocephalus Day on October 26th, which is the annual international day dedicated to fostering support for individuals impacted by this condition whilst celebrating their contributions and achievements in all areas of life.


The local organisers of this event, the Spina Bifida and Hydrocephalus Association of Malaysia (SIBIAM) is an association that has tirelessly served the SBH community in Malaysia for more than 17 years. Over the years SIBIAM has formed strategic partnerships with the Rotary Club Damansara and the District Action Group for Spina Bifida and Hydrocephalus (DASH) a special initiative within the Rotary network to carry out its activities.


Therefore, together, we look forward to providing you with an ambitious program as part of this 30th anniversary International Conference on Spina Bifida and Hydrocephalus in the beautiful city of Kuala Lumpur taking place from October 24th to 26th, 2024.


Thank you for being a part of this significant event and we wish you an impactful and memorable conference experience.

This conference is for
Healthcare Professionals
  • General Practitioner
  • Family Medicine Specialist
  • Clinical Psychologist
  • Gynaecologist
  • Neurosurgeon
  • Obstetrician
  • Rehabilitation Physician
  • Orthopaedic Surgeon
  • Paediatrician
  • Paediatric Colorectal Team
  • Urologist
  • Scientist
  • Others

  • Counsellor
  • Educator
  • Nurse
  • Physiotherapist
  • Psychologist
  • Occupational Therapist
  • Orthotist
  • Prosthetist
  • Others
Non-Healthcare Professionals
  • Architect
  • City Planner
  • Disability Advocate
  • Engineer
  • Government Agency
  • Hospitality and Tourism Industry
  • Policy Maker
  • Robotic
  • Rotarian
  • Teacher
  • Technologist
  • And for those who are interested
Spina Bifida and Hydrocephalus Persons and Families

Frequently Asked Questions

The SBH (Spina Bifida and Hydrocephalus) convention offers various benefits to attendees of different age groups. For participants aged 18 and older, the convention provides opportunities to learn about global SBH communities, stay updated on medical care and rehabilitation advancements, attend workshops on Independent Living Skills, Vocational Training, and Hobbies, and explore the host city to embrace new cultures and experiences.


Attendees between 13 and 17 years old can engage in technology exploration, attend workshops on skills and hobbies, and connect with both Malaysian and international SBH peers. Younger children (below 12 years old) have the chance to connect with SBH friends, participate in play-based learning led by occupational therapists and physiotherapists, and engage in educational exploration and travel activities.

  • Gain knowledge about what is happening within the SBH community.
  • Gain knowledge from individuals from the SBH community and guest speakers that will provide an insight to their needs.
  • Learn from across industries the developments that are available to assist this community.
  • Share best practices between governments on how they create opportunities for the SBH community in their city / state / country.

  • Understand the need for a multidisciplinary approach to SBH care
  • Update knowledge on current healthcare practises
  • Learn about related developments in fields of technology , applications and products that can help improve quality of life for SBH persons and families
  • Connect with various other healthcare professionals and related industry players, as well as join SBH family groups to better understand their needs to make healthcare relevant

  • Learn about what is happening within the SBH community.
  • Learn from individuals from the SBH community and guest that will provide an insights to theirs needs.
  • Learn from across industries the developments that are available.
  • Ideathon or hackathon to develop cutting-edge technology, applications, and products that can help SBH individuals have more independent and fulfilling lives.
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